31 December 2020MOH Welcomes Private Donations For Rare Disease Treatment The Ministry of Health (MOH) is currently in the process of refining the list of rare diseases in Malaysia.
02 March 2020Redefining Rare — Azhar Talib, Bruce Lim & Edmund Lim In Malaysia, there is still no official definition for a rare disease.
06 December 2019Rare Disease 2020 Budget Rose To RM16.5Mil, MOH Clarifies The actual 2020 budget is RM16.5 million, not RM10 million.
29 November 2019One Step Forward By Ministry Of Health For SMA Patients One Step Forward by the Ministry of Health with the National Framework for Rare Disease. Patients and families with...
13 November 2019MOH Forms National Framework For Rare Diseases The committee will look at procuring orphan drugs for Malaysia.
08 October 2019Budget 2020: Patients Want New Cancer Drugs, Rare Disease Funds Increase allocations for public university hospitals, as most cancer patients there suffer financial catastrophe.
12 July 2019Happy Birthday Branden! – Edmund Lim The 9 years of lessons gained growing up with a rare disease called Spinal Muscular Atrophy (SMA).