In Malaysia, there is still no official definition for a rare disease.
Tag: rare diseases
06 December 2019
Rare Disease 2020 Budget Rose To RM16.5Mil, MOH Clarifies
The actual 2020 budget is RM16.5 million, not RM10 million.
29 November 2019
One Step Forward By Ministry Of Health For SMA Patients
One Step Forward by the Ministry of Health with the National Framework for Rare Disease. Patients and families with...
13 November 2019
MOH Forms National Framework For Rare Diseases
The committee will look at procuring orphan drugs for Malaysia.
Increase allocations for public university hospitals, as most cancer patients there suffer financial catastrophe.
12 July 2019
Happy Birthday Branden! – Edmund Lim
The 9 years of lessons gained growing up with a rare disease called Spinal Muscular Atrophy (SMA).