28 February 2022 Letter SMA-LL Steps To Keep Moving Forward — Yap Sook Yee & Edmund Lim There must be better understanding and support for people living with rare diseases in Malaysia.
6 December 2021 Malaysia Getting To The Heart Of Angiosarcoma: Knowing About Rare Diseases Can Save Your Life Specific screenings can be used to detect rare diseases, and it is important to get a consultation once any symptoms arise.
29 October 2021 Malaysia Budget 2022: Income Tax Reliefs For Psychotherapy, Counselling The government has allocated RM70 million to address mental health issues exacerbated by the Covid-19 pandemic.
27 October 2021 Malaysia Genetic Counselling Under MOH Only Available In HKL, Penang Hospital Khairy Jamaluddin says the MOH will review a proposal to establish a scheme to produce more genetic counsellors under the ministry.
18 October 2021 Malaysia MOH Allocated RM10Mil For Rare Disease Treatment In 2021 Khairy Jamaluddin says the Health Ministry aims to get an appropriate budget to ensure the continuity of treatment for rare diseases.
31 December 2020 Malaysia MOH Welcomes Private Donations For Rare Disease Treatment The Ministry of Health (MOH) is currently in the process of refining the list of rare diseases in Malaysia.
2 March 2020 Letter Redefining Rare — Azhar Talib, Bruce Lim & Edmund Lim In Malaysia, there is still no official definition for a rare disease.
6 December 2019 Malaysia Rare Disease 2020 Budget Rose To RM16.5Mil, MOH Clarifies The actual 2020 budget is RM16.5 million, not RM10 million.
29 November 2019 Letter One Step Forward By Ministry Of Health For SMA Patients One Step Forward by the Ministry of Health with the National Framework for Rare Disease. Patients and families with Spinal Muscular Atrophy (SMA) in Malaysia are encouraged.
13 November 2019 Malaysia MOH Forms National Framework For Rare Diseases The committee will look at procuring orphan drugs for Malaysia.