31 December 2020
The Ministry of Health (MOH) is currently in the process of refining the list of rare diseases in Malaysia.
Tag: rare diseases
2 March 2020
In Malaysia, there is still no official definition for a rare disease.
6 December 2019
The actual 2020 budget is RM16.5 million, not RM10 million.
29 November 2019
One Step Forward by the Ministry of Health with the National Framework for Rare Disease. Patients and families with Spinal Muscular Atrophy (SMA) in Malaysia are encouraged.
13 November 2019
The committee will look at procuring orphan drugs for Malaysia.
8 October 2019
Increase allocations for public university hospitals, as most cancer patients there suffer financial catastrophe.
12 July 2019
The 9 years of lessons gained growing up with a rare disease called Spinal Muscular Atrophy (SMA).