16 June 2022
The NPRA has authorised Roche’s Evrysdi for treatment of spinal muscular atrophy (SMA) in adults and children aged two months and older.
Tag: spinal muscular atrophy (SMA)
28 February 2022
There must be better understanding and support for people living with rare diseases in Malaysia.
13 August 2021
The continued absence of effective treatments for SMA in Malaysia denies people with this condition the chance of living a different and better future.
1 June 2020
Letter
James Low: Lawyer, Law Scholar, Disability Rights Advocate, Child of God, Brother, Friend — Harapan OKU
James's one final wish would be for the Persons with Disabilities (PwD) Act 2008 to be reformed.
29 November 2019
One Step Forward by the Ministry of Health with the National Framework for Rare Disease. Patients and families with Spinal Muscular Atrophy (SMA) in Malaysia are encouraged.
20 November 2019
There is also no database for SMA, says MOH.
8 October 2019
Increase allocations for public university hospitals, as most cancer patients there suffer financial catastrophe.